Publications include:
Exceptional Parent Magazine
“Families Seek a Greater Role in Search for Rare Disease Treatments” (December, 2011)
Journal of Literary and Cultural Disability Studies
“Nothing is Uglier than Ignorance”: Art, *Social Science, and the Disability Community in the Positive Exposure Photography Project (Issue 5.1, 2010)
Moebius Syndrome News
Library Journal “Marrakesh Treaty in Action” (May 2019)