Writing

Publications include:

Exceptional Parent Magazine

“Families Seek a Greater Role in Search for Rare Disease Treatments” (December, 2011)

Journal  of Literary and Cultural Disability Studies

“Nothing is Uglier than Ignorance”: Art, *Social Science, and the Disability Community in the Positive Exposure Photography Project (Issue 5.1, 2010)

Moebius Syndrome News

Library Journal “Marrakesh Treaty in Action” (May 2019)