Last week’s New York Times Book Review had a fascinating review of a new book entitled The Boy in the Moon: A Father’s Journey to Understand His Extraordinary Son
by Ian Brown. The book is a memoir from a writer whose son has Cardiofaciocutaneous Syndrome (CFC). For me, I’m always fascinated by writing about disabilities in general… and most especially when it has to do with craniofacial conditions (which is very, very rare!) I’m thinking through approaching a larger essay project having to do with growing up with Moebius syndrome, so any inspiration I can gleam from other authors who approach the topic is wonderful.
And for the geekiness part of the post, the Italian Moebius Syndrome Foundation has released an iPod app/game that’s filled with information about Moebius! Hope people who can download it (it’s free!) and spread the word.