Rare Project Blog Hop

There are so many rare disorders out there that it’s incredible, if you think about it.  Individual awareness days are wonderful, but the impact of a singular day that unites people across rare disorders – 1 in 7 people have one! – that can influence change on a large-scale basis.  So I think both are important ultimately, small-scale for ourselves and individual disorders, and large-scale, across-disorders to give people the sense that it is just not isolated groups, that there are actually a large number of people who are affected and can potentially be affected.

1 Comment

  1. susie says:

    Thank you friend for helping in your support for RAzRE disease…let 2012 be the year for CURES!Hugs,Susie


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