IRL (pardon the text-speak)

Yesterday my mom and I hosted our annual Christmas Tea party. We had our closest and oldest friends for a few hours of talking, reminiscing, and lots of eating!

This event reinforces to me how vital personal, in person support is. Most of these women have been with me or my family through surgeries, therapies, successes and struggles. It’s important. 

Even though most of them do not have that much experience with Moebius syndrome or chronic illness besides knowing me, the ability to have a face-to-face supportive community is vital to me.

I just thought I needed to acknowledge (and thank!) my IRL community, as I sometimes online focus on the virtual community.


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