What if there aren’t “Ten little fingers and ten little toes”?

When I was choosing my books for storytime last week at the library (due to some staffing changes, I am now doing the occasional storytime! Slightly petrifying but satisfying when it goes well and toddlers and caregivers leave happy!) I found a classic on the shelves: The Little Fingers and Ten Little Toes by Mem Fox and Helen Oxenbury.

The refrain of the book, told in rhyme, is

And both of these babies, as everyone knows,
had ten little fingers/and ten little toes.”

Upon re-reading this time, I was struck with the conundrum of… what in the world would I do if a child with a hand or foot animality came into this storytime? What rules do you follow when dealing with truly exceptional uncommon differences?

I do not have the hand anomalities sometimes associated with Moebius syndrome (although I do have rather crooked index fingers!), and clubfoot and residual issues from that, but I kind of thought about this the way I think about the colloquial use of smiling in our lexicon. If I got truly offended anytime something – a song, an advertisement, a common phrase – mentions smiling, I would truly spend my life offended.

And honestly, there aren’t statistically that many of us who cannot smile (or have “unique” smiles) that it makes sense that it doesn’t figure into the scope of thought. While it’s great to point it out, and helps awareness and understanding, I have also learned to take a deep breath and look holistically at these things. But children usually don’t have that perspective. I know I spent a few years very offended when people mentioned smiling, no matter how innocuous. The last thing you want to do is offend someone from a simple book.

So this takes us back to the seemingly innocuous children’s rhyme… What in the world do you do? “And both of these babies, as everyone knows, had ten little fingers/and ten little toes… except for the ones with hand and foot anomalities, who may not!?” I didn’t say that this time, but it made me pine for some great very basic books about children with disabilities. It’s tricky to find disability literature for children that isn’t too saccharine or implausible – the Schneider Family Book Awards are wonderful, but they tend to award picture books for older readers (as well as middle grades and young adult) I have a ton of resources for middle grades and even late elementary, but a storytime appropriate book about those babies who may not have ten little fingers and ten little toes would be magnificent.

Young children are so receptive to differences and are sponges… I would love to harness this openness for awareness of differences both big and small. So that is my resolve in a few weeks when I next do storytime, to search for good books about differences that will teach that even though babies might not all have ten little fingers and ten little toes, they are all equally loved and special.

2015 in Thoughts

I don’t do New Year’s Resolutions. Just not worth the pressure one puts on oneself. But of course I have lessons from 2014 and hopes for 2015.

Managed to start 2 new jobs in 2014, which I hope doesn’t happen again! Both good moves on my part and I learned a lot from both, but a little too much newness for my liking. I’m nearing the 6-month mark at work, and my instances of “oh %#^+ I have no clue what to do!” are (thankfully) rapidly decreasing. I like the feeling of going into work and basically feeling competent at what I’m doing. I applied to be on the list for a promotion… so, we’ll see.

Non-work things were sometimes great, often tough this year. My grandmother fell in the summer and passed away in the fall. That was rough for my mother and my extended family – even though she was not particularly grandmotherly in that stereotypical way, she was still family. I had 2 horses I was riding become lame and un-rideable. A looked-forward-to trip to New York City had to be cancelled. But, of course, those things are trivial when compared to family.

There was good stuff too – Friends at the Moebius Syndrome Conference, learning how to ride a big 18hh sweetie of a draft horse, a wonderful weekend on the beach at my favorite west coast hotel. In everything, I learned a lot about myself and about life (yeah, that sounds overwrought!)

But 2015 is looking promising… moving to an apartment closer to work and to the barn (and away from some of the anxiety-producing civil unrest) this month, traveling to NYC in February (yes, I will be freezing!), going to a really interesting conference in September. And hopefully moving up in my career.

We shall see what 2015 holds for me.

2014 in review (according to WordPress)

The WordPress.com stats helper monkeys prepared a 2014 annual report for this blog.

Here’s an excerpt:

A New York City subway train holds 1,200 people. This blog was viewed about 3,700 times in 2014. If it were a NYC subway train, it would take about 3 trips to carry that many people.

Click here to see the complete report.

Wordless Wednesday: Meeting Santa

Had our annual Canine Companions for Independence – East Bay Chapter dog holiday party! Met Santa, played games (and won toys!), said “Hi” to new and old friends, and survived being dressed up in a Santa hat!
IMG_4089.JPG

IMG_4079.JPG

IMG_4082.JPG

IMG_4077.JPG

IMG_4088.JPG

#GivingTuesday

IMG_0338.JPG

We have a day for giving thanks. We have two for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back. On Tuesday, December 2, 2014, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give.

I will admit it: I hit the mall this weekend… and Costco (found the dragon dog toys that everyone has been raving about!)… and Walmart, since apparently Costco doesn’t carry poop bags! I spent perhaps more than I intended to, although I blame needing to assemble more of a work wardrobe for most of it! So I contributed to the Black Friday Weekend and Cyber Monday craziness.

But I really love the message and intention of #GivingTuesday. I have always been strongly involved with a few non-profits as a volunteer, and I give what I can. But the gift of time is even more valuable. Yesterday the gift of time involved me having to hurriedly compose a ConstantContact e-mail and social media posts after my computer died on me (and is still dead!). It was kind of a pain, but it’s satisfying when the “likes”, “shares” and “retweets” start happening.

I hope to someday be in a financial position to give more (haha, says she who works for the county government…) but for now giving time is how I’m celebrating #GivingTuesday – manning tables for Canine Companions for Independence, sharing my story, doing all the web & social media for the Moebius Syndrome Foundation… It is true that giving back makes me feel better about myself and the world around me.

Pondering Grumpy Cat’s Appeal & Facial Paralysis

IMG_0335.JPG
Grumpy Cat Unveils 2014 Macy’s Holiday Windows | Union Square

So Grumpy Cat helped open the season for the Macy’s San Francisco SPCA windows yesterday – one of my favorite holiday traditions ever, I remember when they used to be in the old Gump’s – and of course got all kind of attention because, well, he’s Grumpy Cat.

And I admit, he amuses me. His nonchalance is endearing. But then I wonder… is being amused by this slightly morose-looking feline the same thing as laughing at someone for the way they look? Especially for me, the idea of being laughed at because of his dour expression rubs me the wrong way. Granted the cat has no perceptions of being teased, but what kind of precedent are we setting.

But then I look at the persona his “people” have crafted… and it’s really not that different from what any of us who look different have done, using what we have to the best of our abilities and compensating for our weaknesses. He is catty (no pun intended), hilarious, and scathing… but all in the spirit of fun. He demands to be looked at and respected, which I think is a good lesson for anyone in taking charge.

I guess I end up rather equivocal about Grumpy Cat, but admit to finding his marketing strategy hilarious and – in a bizarre way – inspirational.

A Love Letter to Singulair

Okay, I know I’m being facetious. I blame the Dayquil I’ve been on for the last 5 days as I get over my first cold of the season. But that’s beside the point.

This post is about my utmost appreciation for whatever pharmaceutical company who developed Singulair when I was in high school. They have saved my lungs, and my sanity.

My middle and high school years were rough health-wise: pneumonia a few times, a nasty collapsed lung and hospital stay, and lots of missed school days due to lung issues. And then Singulair came along, and I’ve had very few truly nasty respiratory issues since.

I still get sick all the time, and am forever analyzing my snot to see if yellow has turned to green (gross, I know, but you gotta do it!), but I am thankful that although I feel icky, it usually doesn’t translate into actual infections from the cold stage.

When you’re a student, even in college and grad school, it’s easier to be sick. It’s a pain making up work and such, but as far as real-world ramifications of being sick… there aren’t that many. But being in the real world of work with a chronic illness means taking care of myself and making sure I have my sick leave available for the really bad times.

So every night I take my (now-generic, finally!) Singulair, I’m eternally grateful.

(yeah, I just wrote a post about how much I love big pharmaceutical companies and their products.)

Thankful

I see those things pop up on my Newsfeed like clockwork every morning in November, people listing daily what they are thankful for. I’ve never really done that, mainly because I don’t know if 3/4 of the people reading my newsfeed really even care what 30-something things I am thankful for, and maybe because it just feels a bit too invasive and self-serving for me.

But today as I watched Canine Companions Graduations on breaks at work and when I got home, I felt I should state the (very) obvious: I am so thankful for my dog. Cassius doesn’t make the hard stuff go away or all the painful ness of having a disability go away, but he sure is a help.

I dropped my earbuds on the floor today when I was trying to put them in my drawer after a break and missed. When you are like me and have the combination of eye issues and balance/mobility problems, honestly finding what you dropped is a challenge in itself! But not for CassiusThe Retriever. Picking up things and carrying them places is FUN!

So with Cassius’s help, I got myself out of that annoying situation and got back to work with minimal pain and frustration. For that I am ever-so thankful.

IMG_3885.JPG

Vote!

it’s important to be informed, and to exercise your right to vote. Thinking on a larger, more historic, scale… people (especially women) fought for too long for us now to not care, to not vote. So… I’ve already voted (absentee) but if you haven’t… VOTE!

Canine Companions Graduate Workshop & Halloween Costume Fun

This weekend was the Annual Canine Companions for Independence (I said it right! Trying not to say CCI, at their request, is tough!)

We had a great day and a half saying hi to new and old friends (and when you’re a well-trained Labrador/Golden, everyone is a friend), getting training tips, learning about new programs, and just socializing.

Of course, the highlight of the day was the costume contest! I decided that Cassius had to be something (someone?) literary, and wanted to re-use his costume… so he was Curious George! He was a good sport about it, and won Best Dog Costume! I will enjoy the water bottle and Cassius will undoubtedly appreciate the toys and treat!

That bit of Canine Companions goodness will hold us over for the workweek ahead, which for us starts tomorrow afternoon – No rest for the weary, I guess!

IMG_4757-0.JPG

IMG_4770-0.JPG

IMG_4739-0.JPG

IMG_4786-1.JPG